[Federal Register: July 28, 2005 (Volume 70, Number 144)]
[Notices]
[Page 43693-43694]
From the Federal Register Online via GPO Access [wais.access.gpo.gov]
[DOCID:fr28jy05-32]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Centers for Disease Control and Prevention
[Program Announcement AA173]
A Cooperative Agreement for the Interstitial Cystitis Association
To Develop and Implement a Program To Enhance Interstitial Cystitis
Public and Health Provider Awareness Through Partnership, Education and
Communication; Notice of Intent To Fund Single Eligibility Award
A. Purpose
The Centers for Disease Control and Prevention (CDC) announces the
intent to fund fiscal year (FY) 2005 funds for a cooperative agreement
program to promote public awareness and partnership, provide
interstitial cystitis (IC) education for the general public and for
health care providers, and develop and enhance communication channels
to allow for improved interaction and information sharing among those
with IC, advocates for persons with IC and their families, those who
provide care and services for persons with IC, researchers, public
health scientists, and the general public. The Catalog of Federal
Domestic Assistance number for this program is 93.283.
B. Eligible Applicant
Assistance will be provided only to Interstitial Cystitis
Association, 110 N. Washington Street, Suite 340, Rockville, MD 20850.
Founded in 1984, The Interstitial Cystitis Association (ICA) is a
not-for-profit health organization and the national leader dedicated to
providing patient and physician educational information and programs,
patient support, public awareness and, most importantly, research
funding for IC. ICA is the only not-for-profit national IC organization
that promotes and provides funding for much needed IC research. This
characteristic of ICA's organization is unmatched by any other public
or private IC health organization currently conducting similar
activities in the United States. The primary mission of ICA is to
research a cure and treatment for IC and provide information and
[[Page 43694]]
assistance to patients, doctors, and the general public.
The ICA has over 20 years of achievement unmatched by any other
health organization dealing with IC issues. Some of these achievements
include:
Public awareness--the ICA has consistently attracted media
attention to IC. Numerous articles featuring IC and the ICA have been
published from the ``New York Times,'' ``SELF Magazine,'' ``Good
Housekeeping,'' and many other national magazines. Subject-matter
experts from the ICA have appeared on national TV and radio programs to
include ABC's ``Good Morning America,'' CNN, and National Public Radio.
Physician and Patient Education--Subject-matter experts
from the ICA have published numerous articles on IC for professional
journals including ``Urology'' and the ``World Journal of Urology.''
The ICA has worked closely with the NIDDK Division of Urology for over
15 years and has co-sponsored with the NIDDK, international scientific
conferences as well as national IC patient meetings on IC biannually.
ICA has also sponsored numerous regional educational programs for
patients throughout the United States each year.
Patient Support--The ICA provides a toll-free 800 number
designed to quickly assist both IC patients and healthcare providers.
ICA also provides nationwide individual support via telephone and e-
mail by ICA National Patient Support Advocates; the International IC
Question Corner on its Web site, where patients can e-mail the ICA and
receive one-on-one assistance with their questions; the ICA Physician
Registry which helps IC patients find IC-knowledgeable physicians; and
IC connections, which brings together patients based on specific
interests, concerns and regions, and an informational program on how to
start new IC support groups.
Innovative resources--the ICA published, and continues to
regularly update, a series of brochures and fact sheets as well as ``IC
Treatment Guidelines''--the first comprehensive summary of IC
treatments and medications designed for patients and their physicians
for use as the basis for an individualized treatment plan. The ICA also
publishes an on-line monthly news digest, ``Caf[eacute] ICA,'' and two
quarterly newsletters--the ``ICA Update,'' the only printed newsletter
on IC in the United States, and the ``ICA Physician Perspectives.'' ICA
also publishes a ``Pocket Guide'' series for continuing patient
education.
Comprehensive Web Site--The ICA's Web site http://www.icahelp.org
, established in 1995, is the most comprehensive Web
site on IC available today, receiving over 1.4 million hits per month.
The site includes: a Clinical trials section, their on-line monthly
news digest--``Caf[eacute] ICA,'' IC Question Corner which provides
one-on-one patient support, Treatment Options, a section for health
care providers, a comprehensive research section, and much more * * *.
Non-profit leadership--the ICA remains the only United
States 501 (c)(3) registered non-profit organization to fund IC
research and provide educational programs on IC for both physicians and
patients, as well as the public at large.
This mission and ICA's extensive network of resources and record of
unmatched achievements over the last 20 years, makes it highly probable
that ICA will successfully implement and complete all the required
activities for this program announcement. For these reasons, the ICA is
the only organization being considered for this program announcement.
C. Funding
Approximately $ 510,000 is available in FY 2005 to fund this award.
It is expected that the award will begin on or before September 1,
2005, and will be made for a 12-month budget period within a project
period of up to five years. Funding estimates may change.
D. Where To Obtain Additional Information
For general comments or questions about this announcement, contact:
Technical Information Management, CDC Procurement and Grants Office,
2920 Brandywine Road, Atlanta, GA 30341-4146; telephone: 770-488-2700.
For technical questions about this program, contact: Richard S.
Roman, Project Officer, HCAS/DACH/NCCDPHP/CDC, 4770 Buford Hwy., N.E.,
MS K-51, Chamblee, GA 30341; telephone: 770-488-5144; e-mail:
rsr1@cdc.gov.
Dated: July 22, 2005.
William P. Nichols,
Director, Procurement and Grants Office, Centers for Disease Control
and Prevention.
[FR Doc. 05-14927 Filed 7-27-05; 8:45 am]
BILLING CODE 4163-18-P