[Federal Register: August 16, 2005 (Volume 70, Number 157)]
[Notices]
[Page 48135]
From the Federal Register Online via GPO Access [wais.access.gpo.gov]
[DOCID:fr16au05-75]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Centers for Disease Control and Prevention
[Program Announcement AA226]
Provider Education and Public Awareness About Primary
Immunodeficiency Disease; Notice of Intent To Fund Single Eligibility
Award
A. Purpose
The Centers for Disease Control and Prevention (CDC) announces the
intent to fund fiscal year (FY) 2005 funds for a grant program to the
Jeffrey Modell Foundation for a National Campaign for Provider
Education and Public Awareness about Primary Immunodeficiency (PI
Disease). The purpose of the program is to strengthen the nation's
capacity to carry out public health activities in the area of PI
diseases by increasing physician education and public health awareness
through the program for primary immune deficiency disease as
implemented by the Jeffrey Modell Foundation. The objective is to
disseminate educational information on a national level to public and
private health care providers, educators, third-party payers, impacted
families, and others who may help expedite clinical recognition and
improve the health outcome for Americans with PI disease. The Catalog
of Federal Domestic Assistance number for this program is 93.283.
B. Eligible Applicant
Assistance will be provided only to the Jeffrey Modell Foundation
(JMF) in accordance with language in the Conference Report to the
fiscal year 2005 Appropriations (Pub. L. 108-447, H.R. Rep. No. 108-792
2004)which explains congressional intent that CDC continue to provide
funding to JMF. The specific language is as follows:
``In each of last three years, Congress has made available funds
for CDC to support the national physician education and public
awareness campaign developed by the Jeffrey Modell Foundation. The
Committee understands that the Foundation has leveraged more than
seven dollars from donors and the media for every federal dollar
appropriated and is a model of public-private cooperation. The
Committee encourages the CDC to expand the reach of the Foundation's
campaign to underserved communities, including African-American and
Hispanic populations, and has provided sufficient funding to reach
that critical goal. The Committee also encourages CDC to expand its
programmatic activity on primary immune deficiency diseases to
include pilot programs focused on newborn screening and school
wellness.''
The Jeffrey Modell Foundation, Inc. (JMF) was established in 1987
to address early and precise diagnosis, meaningful treatments, and
ultimately cures for Primary Immunodeficiency Diseases in memory of
Jeffrey Modell, who died from pneumonia due to Primary Immunodeficiency
at the age of 15. It is a multi-faceted nonprofit research foundation
devoted to the early and precise diagnosis, meaningful treatment, and
ultimate cure of PI. The Jeffrey Modell Foundation is focused on the
following Primary Immunodeficiency treatment, education, awareness and
research areas: Clinical and basic research to better understand and
treat Primary Immunodeficiencies; function as a national and
international source for the dissemination of information and education
into the diagnosis and treatment of genetic immunodeficiencies;
advocates on behalf of patients and families to assure access to
excellent and comprehensive care; promote awareness of Primary
Immunodeficiency diseases through programs involving lay, scientific,
and medical communities; and addressing quality of life concerns for
patients with Primary Immunodeficiency diseases. The activities that
are conducted to achieve the above objectives and focuses consist of
but are not limited to the following: Sponsored symposiums and
workshops; support for research and training; and the provision of
diagnostic, clinical, and education services. The Foundation supports a
24-hour-a-day national hotline, which offers information and referrals
to immunologists at major medical centers around the country. We are
not aware of another organization with a similar background, approach,
and as broad a reach in the spectrum of issues related to Primary
Immunodeficiency diseases such as the international focus, service
delivery, and quality of life for PI patients and their families, and
the other areas referenced above.
No other applications are solicited.
C. Funding
Approximately $2,458,778 is available in FY 2005 to fund this
award. It is expected that the award will begin on or before August 31,
2005, and will be made for a 12-month budget period within a project
period of up to five years. Funding estimates may change.
D. Where To Obtain Additional Information
For general comments or questions about this announcement, contact:
Technical Information Management, CDC Procurement and Grants Office,
2920 Brandywine Road, Atlanta, GA 30341-4146, telephone: (770) 488-
2700.
For technical questions about this program, contact: Leah Simpson,
M.B.A., Project Officer, 2877 Brandywine Road, Suite 4847, Atlanta, GA
30341, telephone: (770) 488-8395, e-mail: LSimpson@cdc.gov.
Dated: August 10, 2005.
Alan A. Kotch,
Deputy Director, Procurement and Grants Office, Centers for Disease
Control and Prevention.
[FR Doc. 05-16169 Filed 8-15-05; 8:45 am]
BILLING CODE 4163-18-P