[Federal Register: June 1, 2009 (Volume 74, Number 103)]
[Notices]
[Page 26246-26248]
From the Federal Register Online via GPO Access [wais.access.gpo.gov]
[DOCID:fr01jn09-49]
-----------------------------------------------------------------------
DEPARTMENT OF HEALTH AND HUMAN SERVICES
Centers for Disease Control and Prevention
[60Day-0920-09BS]
Proposed Data Collections Submitted for Public Comment and
Recommendations
In compliance with the requirement of Section 3506(c)(2)(A) of the
Paperwork Reduction Act of 1995 for opportunity for public comment on
proposed data collection projects, the Centers for Disease Control and
Prevention (CDC) will publish periodic summaries of proposed projects.
To request more information on the proposed projects or to obtain a
copy of the data collection plans and instruments, call 404-639-5960
and send comments to Maryam I. Daneshvar, CDC Acting Reports Clearance
Officer, 1600 Clifton Road, MS-D74, Atlanta, GA 30333 or send an e-mail
to omb@cdc.gov.
Comments are invited on: (a) Whether the proposed collection of
information is necessary for the proper performance of the functions of
the agency, including whether the information shall have practical
utility; (b) the accuracy of the
[[Page 26247]]
agency's estimate of the burden of the proposed collection of
information; (c) ways to enhance the quality, utility, and clarity of
the information to be collected; and (d) ways to minimize the burden of
the collection of information on respondents, including through the use
of automated collection techniques or other forms of information
technology. Written comments should be received within 60 days of this
notice.
Proposed Project
Formative Evaluation and Message Testing to Inform the Development
of Health Promotion Materials for the National Hemophilia Foundation's
Hemophilia and AIDS/HIV Network for the Dissemination of Information
(HANDI)--NEW--National Center on Birth Defects and Developmental
Disabilities (NCBDDD), Centers for Disease Control and Prevention
(CDC).
Background and Brief Description
The Division of Blood Disorders, located within the National Center
on Birth Defects and Developmental Disabilities, implements health
promotion and wellness programs designed to prevent secondary
conditions in people with bleeding and clotting disorders. These
programs are carried out in partnership with community-based
organizations on the national and local level. The division's largest
and longest standing cooperative agreement is held by the National
Hemophilia Foundation (NHF). NHF, founded in 1948, has a long history
of service through education, advocacy and research for people and
families with hemophilia and other bleeding disorders.
The Hemophilia and AIDS/HIV Network for the Dissemination of
Information (HANDI) is NHF's resource center which provides
information, materials, and support to people with bleeding and
clotting disorders. Over the past 17 years, HANDI's resource collection
has grown to meet the changing needs of the community. HANDI processes
thousands of requests for information from a wide variety of
individuals and organizations including NHF chapters, medical
professionals, consumers and their families, and teachers and students
conducting research. The types of information requested reflect a
diversity of needs--topics include home care, orthopedics, physical
therapy, rare factor deficiencies, psychosocial issues, blood safety,
women's health, and financial and insurance reimbursement issues.
HANDI's current resource library collection contains nearly 13,000
items. However, the process by which materials have been selected for
development has not been informed by a systematic needs assessment or
other exploratory research. Therefore it is not known if the materials
and messages that have been developed are meeting the information needs
of the audiences they were intended to serve.
While there seems to be many HANDI materials available that focus
on parents and family members of newly diagnosed children, considerably
less attention has been given to developing materials for young
children and adolescents, particularly materials that address
transition issues. There are many types of transitions for the person
with a bleeding disorder. These include acceptance of the bleeding
disorder, self care, progressing through school, vocational/career
planning, moving to an adult center, starting a family, middle age, and
retirement. Transition occurs throughout life for all people, but for
those with chronic illness, it takes on additional significance due to
the nature of their condition.
The CDC's Division of Blood Disorders in conjunction with the
National Hemophilia Foundation will conduct focus groups to gather
information that will be used to design educational materials and
health promotion programs for young children (aged 5-12 years) and
adolescents (aged 16-19 years) that address transition issues. Focus
groups will be used to explore the type of information, resources, and
support young children and adolescents need related to transition
issues. The groups will also be used to explore how young children and
adolescents prefer to receive health messages and health information
(e.g., brochures, videos, podcasts, U-tube, etc.). These findings will
inform the development of key messages tailored to the target audiences
that will then be tested during another set of focus groups to see how
well the messages resonate with the intended end users.
The Contractor selected will work with CDC and NHF, through its
chapter network, to identify and recruit focus group participants.
Formative research participants will include parents of young children
(aged 5-12 years), parents of teenagers or young adults who can reflect
back upon their experience and share what information, resources, and
support they wished had been available when their child was young, and
adolescents (aged 16-19 years). Message testing participants will
include parents of young children (aged 5-12 years) and adolescents
(aged 16-19 years). Participants will be recruited to participate in
one of sixteen in-person focus groups that will be conducted in the
following cities:
Detroit, Atlanta, Philadelphia, San Francisco (for the
formative research task), and
Milwaukee, Houston, Boston, and San Diego (for the message
testing task)
There are no costs to the respondents other than their time.
Estimated Annualized Burden Hours
----------------------------------------------------------------------------------------------------------------
Number of Average burden
Respondents Number of responses per per response Total burden
respondents respondent (in hours) (in hours)
----------------------------------------------------------------------------------------------------------------
Parents (formative groups)...................... 36 1 2 72
Adolescents (formative groups).................. 36 1 2 72
Parents (message testing groups)................ 36 1 2 72
Adolescents (message testing.................... 36 1 2 72
groups).........................................
---------------------------------------------------------------
Total....................................... .............. .............. .............. 288
----------------------------------------------------------------------------------------------------------------
[[Page 26248]]
Dated: May 26, 2009.
Maryam I. Daneshvar,
Acting Reports Clearance Officer, Centers for Disease Control and
Prevention.
[FR Doc. E9-12630 Filed 5-29-09; 8:45 am]
BILLING CODE 4163-18-P