[Federal Register Volume 74, Number 157 (Monday, August 17, 2009)]
[Notices]
[Pages 41436-41437]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: E9-19584]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Office of the Secretary
Notice of Meeting: Secretary's Advisory Committee on Genetics,
Health, and Society
Pursuant to Public Law 92-463, notice is hereby given of the
twentieth meeting of the Secretary's Advisory Committee on Genetics,
Health, and Society (SACGHS), U.S. Public Health Service. The meeting
will be held from 8:30 a.m. to approximately 6 p.m. on Thursday,
October 8, 2009, and from 8 a.m. to approximately 3:30 p.m. on Friday,
October 9, 2009, at the Hubert H. Humphrey Building, 200 Independence
Avenue SW., Washington, DC 20201. The meeting will be open to the
public with attendance limited to space available. The meeting also
will be Web cast.
The main agenda items involve the review of three SACGHS draft
reports: a final draft report and its recommendations on gene patents
and licensing practices along with comments received on the public
consultation draft circulated earlier this year; a public consultation
draft report on genetics education and training; and a revised draft
paper on direct-to-consumer genetic testing. The first day of the
meeting will include an extended period of time for interested members
of the public to provide their perspectives on gene patents and
licensing practices and their effect on patient access to genetic
tests. Members of the public are encouraged to contact the SACGHS
Executive Secretary (see below) by September 15, 2009, if they wish to
participate in this extended public comment period. Other agenda items
include an update on regulations implementing the Genetic Information
Nondiscrimination Act, a report on activities of the Clinical Utility
and Comparative Effectiveness Task Force, and a brief discussion to
initiate the Committee's work on ethical issues related to genomic data
sharing.
As always, the Committee welcomes hearing from anyone wishing to
provide public comment on any issue related to genetics, health and
society. Individuals who would like to provide public comment should
notify the SACGHS Executive Secretary, Ms. Sarah Carr, by telephone at
301-496-9838 or e-mail at [email protected]. The SACGHS office is
located at 6705 Rockledge Drive, Suite 750, Bethesda, MD 20892. Anyone
planning to attend the meeting who needs special assistance, such as
sign language interpretation or other reasonable accommodations, is
also asked to contact the Executive Secretary.
Under authority of 42 U.S.C. 217a, section 222 of the Public Health
Service Act, as amended, the Department of Health and Human Services
established SACGHS to serve as a public forum for deliberations on the
broad range of human health and societal issues raised by the
development and use of genetic and genomic technologies and, as
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warranted, to provide advice on these issues. The draft meeting agenda
and other information about SACGHS, including information about access
to the Web cast, will be available at the following Web site: http://oba.od.nih.gov/SACGHS/sacghs_meetings.html.
Dated: August 10, 2009.
Jennifer Spaeth,
Director, NIH Office of Federal Advisory Committee Policy.
[FR Doc. E9-19584 Filed 8-14-09; 8:45 am]
BILLING CODE 4140-01-P