[Federal Register Volume 75, Number 149 (Wednesday, August 4, 2010)]
[Notices]
[Pages 46947-46948]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2010-19119]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Health Resources and Services Administration
Secretary's Advisory Committee on Heritable Disorders in Newborns
and Children; Notice of Meeting
In accordance with section 10(a)(2) of the Federal Advisory
Committee Act (Public Law 92-463), notice is hereby given of the
following meeting:
Name: Secretary's Advisory Committee on Heritable Disorders in
Newborns and Children.
Dates and Times: September 16, 2010, 8:30 a.m. to 5 p.m.,
September 17, 2010, 8:30 a.m. to 3:30 p.m.
Place: Marriott Washington at Metro Center, 775 12th Street,
NW., Washington, DC 20005.
Status: The meeting will be open to the public with attendance
limited to space availability. Participants are asked to register
for the meeting by going to the registration Web site at http://altarum.cvent.com/event/achdnc2010. The registration deadline is
Tuesday, September 14, 2010. Individuals who need special
assistance, such as sign language interpretation or other reasonable
accommodations should indicate their needs on the registration Web
site. The deadline for special accommodation requests is Friday,
September 10, 2010. If there are technical problems gaining access
to the Web site, please contact Maureen Ball, Meetings Coordinator
at [email protected].
Purpose: The Secretary's Advisory Committee on Heritable
Disorders in Newborns and Children (Advisory Committee) was
established to advise and guide the Secretary regarding the most
appropriate application of universal newborn screening tests,
technologies, policies, guidelines and programs for effectively
reducing morbidity and mortality in newborns and children having or
at risk for heritable disorders. The Advisory Committee also
provides advice and recommendations concerning the grants and
projects authorized under the Public Health Service Act, 42 U.S.C.
300b-10, (Heritable Disorders Program) as amended in the Newborn
Screening Saves Lives Act of 2008.
Agenda: The meeting will include: (1) A presentation of the
External Review Workgroup's final report on the nomination of
Critical Cyanotic Congenital Heart Disease and draft report on the
nomination of Hyperbilirubinemia to the Advisory Committee's
recommended uniform screening panel; (2) a discussion of the
Advisory Committee's final draft of the report on the use and
storage of newborn screening Residual Blood Spots; (3) an update on
the report being developed by the Sickle Cell Disease Carrier
Screening workgroup; and (4) presentations on the continued work and
reports of the Advisory Committee's subcommittees on laboratory
standards and procedures, follow-up and treatment, and education and
training. Proposed Agenda items are subject to change as priorities
dictate. You can locate the Agenda, Committee Roster and Charter,
presentations, and meeting materials at the home page of the
Advisory Committee's Web site at http://www.hrsa.gov/heritabledisorderscommittee/.
Public Comments: Members of the public can present oral comments
during the public comment periods of the meeting, which are
scheduled for both days of the meeting. Those individuals who want
to make a comment are requested to register online by Tuesday,
September 14, 2010 at http://altarum.cvent.com/event/achdnc2010.
Requests will contain the name, address, telephone number, and any
professional or business affiliation of the person desiring to make
an oral presentation. Groups having similar interests are requested
to combine their comments and present them through a single
representative. The list of public comment participants will be
posted on the Web site. Written comments should be e-mailed no later
than Tuesday, September 14, 2010 for consideration. Comments should
be submitted to Maureen Ball, Meetings
[[Page 46948]]
Coordinator, Conference and Meetings Management, Altarum Institute,
1200 18th Street, NW., Suite 700, Washington, DC 20036, telephone:
(202) 828-5100, fax: (202) 785-3083, or e-mail:
[email protected].
Contact Person: Anyone interested in obtaining other relevant
information should contact Alaina M. Harris, Maternal and Child
Health Bureau, Health Resources and Services Administration, Room
18A-19, Parklawn Building, 5600 Fishers Lane, Rockville, Maryland
20857, telephone (301) 443-0721, [email protected]. More information
on the Advisory Committee is available at http://mchb.hrsa.gov/heritabledisorderscommittee.
Dated: July 29, 2010.
Sahira Rafiullah,
Director, Division of Policy and Information Coordination.
[FR Doc. 2010-19119 Filed 8-3-10; 8:45 am]
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