[Federal Register Volume 75, Number 67 (Thursday, April 8, 2010)]
[Notices]
[Pages 17929-17930]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2010-7929]
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DEPARTMENT OF HEALTH AND HUMAN SERVICES
Health Resources and Services Administration
Secretary's Advisory Committee on Heritable Disorders in Newborns
and Children; Notice of Meeting
In accordance with section 10(a)(2) of the Federal Advisory
Committee Act (Pub. L. 92-463), notice is hereby given of the following
meeting:
Name: Secretary's Advisory Committee on Heritable Disorders in
Newborns and Children.
Dates and Times: May 13, 2010, 8:30 a.m. to 5 p.m. May 14, 2010,
8:30 a.m. to 3:30 p.m.
Place: Renaissance Washington, DC Dupont Circle Hotel, 1143 New
Hampshire Avenue, NW., Washington, DC 20037.
Status: The meeting will be open to the public with attendance
limited to space availability. Participants are asked to register for
the meeting by going to the registration Web site at http://events.SignUp4.com/ACHDNC0510. The registration deadline is Tuesday,
May 11, 2010. Individuals who need special assistance, such as sign
language interpretation or other reasonable accommodations should
indicate their needs on the registration Web site. The deadline for
special accommodation requests is Friday, May 7, 2010. If there are
technical problems gaining access to the Web site, please contact
Maureen Ball, Meetings Coordinator, at [email protected].
Purpose: The Secretary's Advisory Committee on Heritable Disorders
in Newborns and Children (Advisory Committee) was established to advise
[[Page 17930]]
and guide the Secretary regarding the most appropriate application of
universal newborn screening tests, technologies, policies, guidelines
and programs for effectively reducing morbidity and mortality in
newborns and children having or at risk for heritable disorders. The
Advisory Committee also provides advice and recommendations concerning
the grants and projects authorized under the Public Health Service Act,
42 U.S.C. 300b-10, (Heritable Disorders Program) as amended in the
Newborn Screening Saves Lives Act of 2008.
Agenda: The meeting will include: (1) A presentation of the
External Review Workgroup's final report on the nomination of
Hemoglobin H disease to the Advisory Committee's recommended uniform
screening panel; (2) presentations related to the system, information,
and technology needs of newborn screening programs; (3) an update on
the report being developed by the Sickle Cell Disease Carrier Screening
workgroup; and (4) presentations on the continued work and reports of
the Advisory Committee's subcommittees on laboratory standards and
procedures, follow-up and treatment, and education and training.
Proposed Agenda items are subject to change as priorities dictate.
You can locate the Agenda, Committee Roster and Charter, presentations,
and meeting materials at the home page of the Advisory Committee's Web
site at http://www.hrsa.gov/heritabledisorderscommittee/.
Web cast: The meeting will be Web cast. Information on how to
access the Web cast will be available one week prior to the meeting,
May 6, 2010, by clicking on the meeting date link at http://events.SignUp4.com/ACHDNC0510.
Public Comments: Members of the public can present oral comments
during the public comment periods of the meeting, which are scheduled
for both days of the meeting. Those individuals who want to make a
comment are requested to register online by Tuesday, May 11, 2010, at
http://events.SignUp4.com/ACHDNC0510. Requests will contain the name,
address, telephone number, and any professional or business affiliation
of the person desiring to make an oral presentation. Groups having
similar interests are requested to combine their comments and present
them through a single representative. The list of public comment
participants will be posted on the Web site. Written comments should be
e-mailed via e-mail no later than Tuesday, May 11, 2010, for
consideration. Comments should be submitted to Maureen Ball, Meetings
Coordinator, Conference and Meetings Management, Altarum Institute,
1200 18th Street, NW., Suite 700, Washington, DC 20036; telephone: 202-
828-5100; fax: 202-785-3083; or e-mail: [email protected].
Contact Person: Anyone interested in obtaining other relevant
information should write or contact Alaina M. Harris, Maternal and
Child Health Bureau, Health Resources and Services Administration, Room
18A-19, Parklawn Building, 5600 Fishers Lane, Rockville, Maryland
20857, Telephone (301) 443-0721, [email protected]. More information on
the Advisory Committee is available at http://mchb.hrsa.gov/heritabledisorderscommittee.
Dated: March 31, 2010.
Sahira Rafiullah,
Director, Division of Policy and Information Coordination.
[FR Doc. 2010-7929 Filed 4-7-10; 8:45 am]
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