[Federal Register Volume 76, Number 59 (Monday, March 28, 2011)]
[Notices]
[Page 17140]
From the Federal Register Online via the Government Publishing Office [www.gpo.gov]
[FR Doc No: 2011-7166]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Secretary's Advisory Committee on Heritable Disorders in Newborns 
and Children; Notice of Meeting

    In accordance with section 10(a)(2) of the Federal Advisory 
Committee Act (Pub. L. 92-463), notice is hereby given of the following 
meeting:

    Name: Secretary's Advisory Committee on Heritable Disorders in 
Newborns and Children.
    Dates and Times: May 5, 2011, 9:30 a.m. to 5 p.m., May 6, 2011, 
8:30 a.m. to 3:30 p.m.
    Place: Renaissance Washington, DC, Dupont Circle Hotel, 1143 New 
Hampshire Avenue, NW., Washington, DC 20037.
    Status: The meeting will be open to the public with attendance 
limited to space availability. Participants are asked to register 
for the meeting by going to the registration Web site at http://altarum.cvent.com/event/SACHDNC052011. The registration deadline is 
Tuesday, May 3, 2011. Individuals who need special assistance, such 
as sign language interpretation or other reasonable accommodations 
should indicate their needs on the registration Web site. The 
deadline for special accommodation requests is Friday, April 29, 
2011. If there are technical problems gaining access to the Web 
site, please contact Maureen Ball, Meetings Coordinator at 
[email protected].
    Purpose: The Secretary's Advisory Committee on Heritable 
Disorders in Newborns and Children (Advisory Committee) was 
established to advise and guide the Secretary regarding the most 
appropriate application of universal newborn screening tests, 
technologies, policies, guidelines and programs for effectively 
reducing morbidity and mortality in newborns and children having or 
at risk for heritable disorders. The Advisory Committee as 
authorized under the Public Health Service Act 42 U.S.C. 300b-10, 
and amended in the Newborn Screening Saves Lives Act of 2008, also 
provides advice and recommendations concerning the grants and 
projects authorized under the Public Health Service Act, 42 U.S.C. 
300b-8, (Heritable Disorders Program) as amended in the Newborn 
Screening Saves Lives Act of 2008.
    Agenda: The meeting will include: (1) A presentation of the 
External Review Workgroup's final report on the nomination of 
Hyperbilirubinemia to the Advisory Committee's recommended uniform 
screening panel; (2) an update from the Evidence Evaluation Methods 
workgroup; and (3) presentations on the continued work and reports 
of the Advisory Committee's subcommittees on laboratory standards 
and procedures, follow-up and treatment, and education and training. 
Proposed agenda items are subject to change as priorities dictate. 
You can locate the Agenda, Committee Roster and Charter, 
presentations, and meeting materials at the home page of the 
Advisory Committee's Web site at http://www.hrsa.gov/heritabledisorderscommittee/.
    Public Comments: Members of the public can submit written 
comments and/or present oral comments during the public comment 
periods of the meeting, which are scheduled for both days of the 
meeting. Those individuals who want to make oral comments are 
requested to register online by Tuesday, May 3, 2011 at http://altarum.cvent.com/event/SACHDNC052011. Requests should contain the 
name, address, telephone number, and any professional or business 
affiliation of the person desiring to make an oral presentation. 
Groups having similar interests are requested to combine their 
comments and present them through a single representative. Written 
comments should be emailed no later than Tuesday, May 3, 2011, for 
consideration. Written comments should contain the name, address, 
telephone number, and any professional or business affiliation of 
the author. Submit written comments to Maureen Ball, Meetings 
Coordinator, Conference and Meetings Management, Altarum Institute, 
1200 18th Street, NW., Suite 700, Washington, DC 20036, telephone: 
202 828-5100; fax: 202 785-3083, or e-mail: [email protected].
    Contact Person: Anyone interested in obtaining other relevant 
information should write or contact Alaina M. Harris, Maternal and 
Child Health Bureau, Health Resources and Services Administration, 
Room 18A-19, Parklawn Building, 5600 Fishers Lane, Rockville, 
Maryland 20857, Telephone (301) 443-0721, [email protected]. More 
information on the Advisory Committee is available at http://mchb.hrsa.gov/heritabledisorderscommittee.

    Dated: March 22, 2011.
Wendy Ponton,
Director, Office of Management.
[FR Doc. 2011-7166 Filed 3-25-11; 8:45 am]
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